Scottish Landmarks to turn orange for Batten Disease Awareness Day
Landmarks across Scotland including SSE Hydro, Discovery Point and RRS Discovery Dundee, Tron Theatre and many more will be lighting up orange today to raise awareness of Batten Disease.
Article Source: BDFA
Last Updated: 7 June 2019 11:33
Batten disease is a rare genetic neurodegenerative disease that always results in death. There are a number of types of the disease. Symptoms include blindness, uncontrollable seizures, sleep difficulties, loss of speech and swallowing, and the development of childhood dementia. Each type of Batten disease is diagnosed at different points of a child’s life and the life expectancy ranges from 4 – 30 years old depending on which type of the disease the child has.
There is no cure.
Samantha Barber, CEO of BDFA, said: “Every Batten Disease Awareness Day is pivotal in raising awareness of this devastating rare disease. This year BDFA are delighted and grateful that several venues are marking this important day. Members of the public can show their support by wearing something orange and sharing their picture with us on social media using #BattenDisease.
“Each year, children are diagnosed with Batten disease. They and their families rely on the BDFA to support them through the difficult times. We receive no government funding. If you would like to donate to BDFA to show your support, please visit our website at www.bdfa-uk.org.uk.”
Organisers are asking the public to share their pictures of buildings lit up on social media using hashtag #battendisease.
Sponsored Links
Latest Stirling News
BTS fans take the spotlight in latest K Pop documentary heading to Vue
BTS Army: Forever We Are Young, a brand-new documentary celebrating the fans that helped catapult 21st century pop icons BTS into global stardom comes to Vue.
READ MORE
Plenty of summer family fun at Vue venues across Scotland
Family favourites and animated adventures are heading to the big screen this summer holiday at Vue venues across Scotland.
READ MORE
SAY Award opens submissions for eligible albums
Scotland’s national music prize – the Scottish Album of the Year (SAY) Award – has opened submissions for 2025’s £20,000 prize.
READ MORE
Innis & Gunn Joins Forces with Stirling Highland Games in a 3 Year Cultural Celebration
The Stirling Highland Games has proudly announced a new three-year partnership with one of Scotland’s most iconic brewing brands, Innis & Gunn.
READ MORE
Great value summer holiday activities at Dobbies Garden Centres
This summer, gather the whole family and head to Dobbies Garden Centres for a day of fun-filled activities that will keep costs down.
READ MORE
FREE family festival at Loch Lomond Shores returns on 5th and 6th July
Summerfest, the FREE family festival at Loch Lomond Shores, is back on the 5th and 6th of July with lots of things to see and do!
READ MORE
Earlybird tickets drive buzz for 2026 Scottish Caravan, Motorhome & Holiday Home Show
The biggest show of its kind in Scotland returns with Earlybird tickets and a give-away with headline sponsor Border Caravans!
READ MORE
July events at Dobbies Garden Centres
Check out July at Dobbies with it's Little Seedlings Club on rainforests and Grow How on pest control and healthy gardens!
READ MORE
Historic Environment Scotland calls for public stories for national wellbeing exhibition
Historic Environment Scotland is calling for people across the country to connect with heritage to boost their wellbeing as a part of a national campaign, Historic Places, Breathing Spaces.
READ MORE
Scottish Bar and Pub Awards 2025 adds two new categories and voting deadline extended!
Scotland's hospitality industry and customers have spoken, and the Scottish Bar and Pub Awards 2025 has listened!
READ MORE
25th year of Refugee Festival Scotland gets underway
Refugee Festival Scotland gets underway today, kick-starting nine days of dance performances, film screenings, visual art and photography exhibitions and community events across the country.
READ MORE
Exclusive Superman screening at Vue venues in Scotland
Tickets are on sale for an exclusive Superman screening at Vue venues in Scotland, with fans in for an extra special treat to take home.
READ MORE
Acclaimed debut Only Here, Only Now from Tom Newlands chosen as Waterstones Book of the Month in Scotland
The paperback edition of Only Here, Only Now by Tom Newlands has just been released - and is already making waves.
READ MORE
Feedback sought on new Walk, Cycle, Live Stirling project
To mark Bike Week UK, people across Stirling are being encouraged to take part in a new survey that will help shape active travel in the area and support the shift to sustainable modes of transport.
READ MORE
Stirling BID team brighten up City Centre with Blooming Planters
Pollinator-friendly plants, funded and organised by Go Forth Stirling BID have added a welcome splash of colour across Stirling city centre.
READ MORE
Funding Boost for Charities at Scottish Building Society AGM
Scottish Building Society marked its Annual General Meeting (AGM) by announcing funding to support eight local charities and good causes across the country.
READ MORE
Classic car enthusiasts set to visit Loch Lomond Shores
Visitors are invited to come along and get up-close to some amazing cars, set against the beautiful backdrop of Loch Lomond, as part of a great day out.
READ MORE
Paws, play and heritage on parade
Bark by popular demand, the Gordon Setter Parade returns on Saturday 5th July as part of the Game & Wildlife Conservation Trust (GWCT) Scottish Game Fair, held at the stunning Scone Palace.
READ MORE
Dobbies hosts brand new Fairy Garden Tea Party
Dobbies Garden Centres are inviting families across the UK along to its stores on Saturday 28th and Sunday 29th of June to spend a magical afternoon filled with fun activities and good food.
READ MORE
Stirling celebrates its rich history at the Walking of the Marches
Stirling’s rich history and heritage was celebrated at its annual Walking of the Marches, which dates back to at least the 12th century, on Saturday (31 May).
READ MORE
Have your say on plans for a sustainable transport system in Stirling
People will have the opportunity to shape a future transport system for Stirling that is fair, clean and affordable with the launch of a new consultation.
READ MORE
How to train your Dad in 4DX Cineworld enlists Gerard Butler
Cineworld is launching a brand new 4DX Father's Day gift experience, containing two 4DX tickets and ponchos, perfect for experiencing the new live-action "How to Train Your Dragon" film.
READ MORE
Summer of Roses: Free gardening workshop at Dobbies
Dobbies Garden Centres is hosting a free Rose-themed Grow How workshop this June, sharing top tips for caring for this beloved flowering plant.
READ MORE
William Wallace Running Festival seeks Teams of Bravehearts
Teams of runners have the chance to race through Scotland’s most historic battlefields and stunning landscapes during an exciting new event - the William Wallace Running Festival.
READ MORE
Cheers to 30 years: Scottish Bar and Pub Awards celebrate with public voting now open
Scotland's longest-running hospitality awards turn 30 - and they want you to have your say!
READ MORE
Loch Lomond Unplugged is coming this weekend!
Loch Lomond Unplugged, our FREE showcase of talented buskers and singer/songwriters, is this weekend and we’re super excited to welcome great acts from across Scotland and beyond!
READ MORE
Restored Memorial to be unveiled in Stirling
Restored memorial to be unveiled in Stirling's old town cemetery to mark the 250th anniversary of the American War of Independence.
READ MORE
Dig into summer fun at Dobbies
Dobbies Garden Centres is inviting children to come along to its free-to-attend Little Seedlings Club, taking place across the country this June.
READ MORE
Aldi to gift year supply of free beer to biggest beer lover in Scotland
Aldi Scotland is on the hunt for the nation's biggest beer lover, as it revamps its popular Best Home Bar Competition by expanding the criteria.
READ MORE
Milestone year for Refugee Festival Scotland
Refugee Festival Scotland has officially unveiled the programme for its highly anticipated 2025 edition, running from 13 – 22 June.
READ MORESponsored Links
Sponsored Links