CLICK HERE TO ADD YOUR EVENT

Scottish Landmarks to turn orange for Batten Disease Awareness Day

Landmarks across Scotland including SSE Hydro, Discovery Point and RRS Discovery Dundee, Tron Theatre and many more will be lighting up orange today to raise awareness of Batten Disease.

Scottish Landmarks to turn orange for Batten Disease Awareness Day

Article Source: BDFA
Last Updated: 7 June 2019 11:33

Batten disease is a rare genetic neurodegenerative disease that always results in death. There are a number of types of the disease. Symptoms include blindness, uncontrollable seizures, sleep difficulties, loss of speech and swallowing, and the development of childhood dementia. Each type of Batten disease is diagnosed at different points of a child’s life and the life expectancy ranges from 4 – 30 years old depending on which type of the disease the child has.

There is no cure.

Samantha Barber, CEO of BDFA, said: “Every Batten Disease Awareness Day is pivotal in raising awareness of this devastating rare disease. This year BDFA are delighted and grateful that several venues are marking this important day. Members of the public can show their support by wearing something orange and sharing their picture with us on social media using #BattenDisease.

“Each year, children are diagnosed with Batten disease. They and their families rely on the BDFA to support them through the difficult times. We receive no government funding. If you would like to donate to BDFA to show your support, please visit our website at www.bdfa-uk.org.uk.”


Organisers are asking the public to share their pictures of buildings lit up on social media using hashtag #battendisease.

Sponsored Links

Hilton Glasgow
Open Pass Scotland
Hilton Glasgow

Latest Stirling News

Have your say on new active travel project for south of Stirling city centre

Have your say on new active travel project for south of Stirling city centre

People are being encouraged to have their say in the second stage of a consultation on four proposed active travel routes for the south of Stirling city centre.

READ MORE
Potential changes to permitted development rights are putting beloved live music venues at risk

Potential changes to permitted development rights are putting beloved live music venues at risk

The public are urged to take part in the Scottish Government's consultation on planning laws, warning that the changes could put the country's live music venues and pubs at risk. 

READ MORE
Art Exhibition and Fashion Sale to Support Strathcarron Hospice

Art Exhibition and Fashion Sale to Support Strathcarron Hospice

Strathblane artists are set to captivate the community with a charity art exhibition this weekend, aiming to raise funds for Strathcarron Hospice, Denny.

READ MORE
The Saltires 2025 Shortlists Announced

The Saltires 2025 Shortlists Announced

The shortlisted titles for this year’s Saltires, Scotland’s National Book Awards, were announced at Blackwell’s bookshop in Edinburgh.

READ MORE
KT Tunstall wins Modern Scottish Classic Award, plus SAY Award Shortlist reveal

KT Tunstall wins Modern Scottish Classic Award, plus SAY Award Shortlist reveal

The Scottish Album of the Year (SAY) Award has unveiled the 10 Shortlisted albums now in the running for 2025’s title and £20,000 prize, as well as five Sound of Young Scotland finalists.

READ MORE
No tricks, just treats at Thistles Stirling this Halloween

No tricks, just treats at Thistles Stirling this Halloween

Thistles, Stirling is set to host a spooky spectacular at the shopping centre this October half term.

READ MORE
Loch Lomond Shores has got the October school holidays sorted

Loch Lomond Shores has got the October school holidays sorted

There's loads to see and do – from pet friendly days out to breakfast with dinosaurs, loch tours and much more!

READ MORE
Keela and Mountaineering Scotland launch new campaign

Keela and Mountaineering Scotland launch new campaign

Keela, the Scottish outdoor clothing brand, and Mountaineering Scotland Launch ‘Within You’, an new three-month campaign, inspiring Confidence, Connection, and Adventure in the Outdoors!

READ MORE
Book Week Scotland 2025 programme announced

Book Week Scotland 2025 programme announced

Scotland's national celebration of books, Book Week Scotland, returns from 17th to 23rd November and tickets are on sale now!

READ MORE
Dobbies donates Christmas trees to local communities

Dobbies donates Christmas trees to local communities

Dobbies Garden Centres is lifting community spirits this season with a Christmas tree donation across the country, in partnership with Needlefresh.

READ MORE
Football legends lace up for 150 mile charity walk inspired by Marcus Stewart, Stephen Darby and the late Doddie Weir

Football legends lace up for 150 mile charity walk inspired by Marcus Stewart, Stephen Darby and the late Doddie Weir

Former Celtic and Scotland football heroes to join ex-player with MND on 150-mile March of The Day to raise funds to help tackle the disease.

READ MORE
First winners announced for GUITARGUITAR Scottish Music Awards

First winners announced for GUITARGUITAR Scottish Music Awards

Amy MacDonald, Hue and Cry, Nathan Evans and The Saint PHNX Band, Skipinnish, Shay O'Dowd and James Emmanuel are among the first winners to be announced for the GUITARGUITAR Scottish Music Awards!

READ MORE
Step into stories of Scotland this October with Living History

Step into stories of Scotland this October with Living History

Scotland’s colourful past bursts to life this October as Historic Environment Scotland (HES) returns with its popular Living History programme for the school holidays.

READ MORE
Autumn events at Marine & Lawn Hotels & Resorts Collection

Autumn events at Marine & Lawn Hotels & Resorts Collection

Marine & Lawn Hotels & Resorts Collection have launched new offerings designed for cosy coastal retreats and joyful pre-festive celebrations.

READ MORE
Scottish Women and Girls in Sport Week launches to inspire the nation with Find Your Fit campaign

Scottish Women and Girls in Sport Week launches to inspire the nation with Find Your Fit campaign

The Scottish Government's Women and Girls in Sport Week launches this week, celebrating the power of movement and encouraging women and girls of all ages to get active in ways that work for them.

READ MORE
Local sporting heroes back Stirling campaign to get more women and girls active

Local sporting heroes back Stirling campaign to get more women and girls active

Some of Stirling’s sporting heroes, including an Olympic champion and a World Championships silver medallist, are supporting a drive to get more local women and girls active.

READ MORE
Unlimited adventures for less than a tank of petrol

Unlimited adventures for less than a tank of petrol

With the October school holidays fast approaching, ScotRail has unveiled a new, affordable way for families to make the most of the break!

READ MORE
Seachdain na Gaidhlig (World Gaelic Week) 2026 launches with rallying call to use it, or lose it

Seachdain na Gaidhlig (World Gaelic Week) 2026 launches with rallying call to use it, or lose it

Seachdain na Gàidhlig will return in 2026, under the banner Use It or Lose It – and organisers are encouraging people across Scotland and the global diaspora to get behind the rallying cry.

READ MORE
Brits brewing up a storm: Macdonald Hotels reports coffee surge

Brits brewing up a storm: Macdonald Hotels reports coffee surge

Brits are now picking up the cafetière, with Macdonald Hotels & Resorts revealing a 10% rise in coffee sales across its 32 UK hotels and resorts in the past year.

READ MORE
Spooky season brings horror icons and vampire romance back to the big screen at Vue

Spooky season brings horror icons and vampire romance back to the big screen at Vue

Some of the latest horror blockbusters – alongside creepy classics, enchanting family favourites and the ever-popular Twilight Saga – will all be heading to Vue venues this Halloween.

READ MORE
Christmas Launch Weekend at Dobbies Garden Centres marks the start of the festive season

Christmas Launch Weekend at Dobbies Garden Centres marks the start of the festive season

Christmas has come early as Dobbies Garden Centres kicks off the season in style at its Christmas Launch Weekend which takes place from Thursday 9th to Monday 13th October.

READ MORE
CCC treats audiences to a frightfully delightful family concert this Halloween

CCC treats audiences to a frightfully delightful family concert this Halloween

Children's Classic Concerts return with their popular Halloween concert performances in Glasgow and Edinburgh later this month!

READ MORE
Arnprior Farm Celebrates 10 Years of Original Pumpkin Patch

Arnprior Farm Celebrates 10 Years of Original Pumpkin Patch

Arnprior Farm is marking 10 years of pumpkin picking with its biggest ever patch and the launch of a once-in-a-lifetime Golden Ticket competition.

READ MORE
SAY Award Longlist announced including Jacob Alon, Kathryn Joseph, Mogwai and more

SAY Award Longlist announced including Jacob Alon, Kathryn Joseph, Mogwai and more

The Scottish Album of the Year (SAY) Award, Scotland's national music prize, has today revealed the 20 outstanding albums on 2025's Longlist.

READ MORE
Beatson Cancer Charity and Scottish National Blood Transfusion Service join forces for Blood Cancer Awareness Month

Beatson Cancer Charity and Scottish National Blood Transfusion Service join forces for Blood Cancer Awareness Month

For the first time, Beatson Cancer Charity has joined forces with the Scottish National Blood Transfusion Service to highlight the vital role blood donors play in the treatment of blood cancers.

READ MORE
Stirling celebrates naval links as HMS Stirling Castle prepares to sail

Stirling celebrates naval links as HMS Stirling Castle prepares to sail

The maritime links between Stirling and the Royal Navy have been celebrated with the naming of a ship in honour of the city’s most iconic landmark.

READ MORE
Secret New Tours at Stirling Castle offer behind the scenes access

Secret New Tours at Stirling Castle offer behind the scenes access

Secret Stirling Tours – a new bespoke tour of Stirling Castle – launches today (Monday 15 September) giving visitors exclusive access to areas of the site that are normally closed to the public.

READ MORE
Local runner swaps sneakers for shackles in spooky Stirling shopping centre sleepover

Local runner swaps sneakers for shackles in spooky Stirling shopping centre sleepover

A Stirling local is set to spend the night in one of the city’s most unusual, and eerie, locations to raise vital funds for children across the world.

READ MORE
Edinburgh Spanish Film Festival returns for its 12th edition

Edinburgh Spanish Film Festival returns for its 12th edition

Edinburgh Spanish Film Festival returns for its 12th edition on the big screen in Edinburgh, Glasgow, Stirling and Inverness from 1st to 19th October 2025.

READ MORE
Cineworld 4DX Rewind returns for 2025

Cineworld 4DX Rewind returns for 2025

Cineworld is excited to announce the return of 4DX Rewind this September across Cineworld 4DX cinemas nationwide!

READ MORE

Sponsored Links

Renfrewshire Council
Renfrewshire Council
ATG
Hostelworld

Sponsored Links

Hilton Glasgow
Open Pass Scotland
Hilton Glasgow
Renfrewshire Council
Renfrewshire Council
ATG
Hostelworld

Popular Events

Christopher Macarthur-Boyd: Howling at the Moon
One of the hottest tickets at the Fringe in 2025, Christopher Macarthur-Boyd brings his new show to the Tolbooth Stirling on Friday 6th March!
Ainsley Hamill
Ainsley Hamill, one of Scotland’s most compelling singers, comes to the Tolbooth Stirling on Wednesday 19th November.
Introduction to Stained Glass with Angela Steel - Weekend Workshops
Join Angela Steel from Mosaic & Glass at Studio 164 in Falkirk to create a traditional painted stained glass panel to hang in your window!
Maggie’s Christmas Wreath Making Workshop
Join us at Maggie's Forth Valley on Thursday 4th December and craft your own festive wreath under the guidance of our talented volunteer Elaine!
Halloween Quiz Night in aid of British Heart Foundation
Come along to The Crown Hotel, Callander on Thursday 30th October for a Halloween Quiz Night in aid of the British Heart Foundation!

Popular Listings

Macrobert Arts Centre Stirling Castle The Albert Halls Stirling The National Wallace Monument Tolbooth Stirling